Anyone know what light pink roses mean? They’re my favorite.
If you’ve been following our story for a while you know I have several diagnoses but we’ve been waiting for almost a year to find out where the chronic pain comes from.
Yesterday we saw a neurologist who diagnosed me with Fibromyalgia. A chronic pain syndrome that can be caused by a previous physical or emotional trauma. From my understanding it’s basically the brain misunderstanding sensations as pain. So for example, I have an itch so I scratch my leg like normal, but for hours I feel like someone is clawing me leg. I walk up a flight of stairs and for days my body feels like I ran up the stairs for hours wearing a weighted body suit. Everything hurts more than it should, and although my muscles aren’t necessarily breaking down it feels like they are. It affects my skin, joints, muscles, nerves, etc.
However most neurologists don’t consider fibromyalgia to be a disease or contrition in itself. It’s more of a collection of symptoms that have no other reason for continuously presenting themselves.
The bad news is, there’s not necessarily a solution besides pain medication. We are going to be doing more testing to make sure there’s not an additional issue. But the good news is we have a name for it, which means I have doctors that understand, when I need disability services I have a reason why, and just for my own sanity to be able to label it. So often it feels like doctors don’t believe me, but when he did the exam this time he notice tender points and weaknesses that I didn’t even know I had.
For so long people kept telling me not to feel defeated if I was diagnosed with something incurable. But I’m not defeated at all. I’ve made great progress from my spine injury, I’m mentally healthier than I ever have been. And as far as the pain I still feel.. I’m just happy to have a name for it, a medical team that listens and is educated enough to properly label my condition, and a doggo that will carry around my light pink roses and physically help me get through the day.